The Centers for Disease Control and Prevention, Agency for Toxic Substances and Disease Registry intends to award a sole source firm-fixed price purchase order to gather data for a nationwide Amyotrophic Lateral Sclerosis (ALS) registry to the Les Turner Foundation, 5550 W Touhy Avenue, Suite 302, Skokie, Illinois 60077-3254. The contract will be for a base period of 12 months and four 12 month option periods. In 2008, Congress enacted the ALS Registry Act to gather and organize information about who gets ALS and the potential causes of ALS. The National ALS Registry is a program to collect, manage and analyze data about persons with ALS. The Agency for Toxic Substances and Disease Registry is charged with developing and managing the registry. The purpose of this contract is to promote the National ALS Registry in the Chicago metropolitan area which has a specialized group that has an ALS clinic, local support groups, local educational events and select social media platforms. The vendor will facilitate ALS-patient computer access to the National ALS Registry web portal, provide educational materials and use social and other forms of media. The Les Turner ALS Foundation is an independent organization that serves more than 90% of the Chicago area ALS population and is the only organization that has direct and proprietary access to a high percentage of ALS patients in a large metropolitan area, including ALS patient databases and mailing lists. Promotion of the ALS registry will consist of continuous outreach and education to the ALS community and provide support to people with ALS who would like to enroll in the registry. The foundation supports the Les Turner ALS Research and Patient Center at Northwestern Medicine, which brings together three research laboratories and a multi-disciplinary patient center under one umbrella. No other vendor in the Chicago area has the capacity or the required level of interest to support the National ALS Registry. The statutory authority for this sole source acquisition is U.S.C. 2304 (c) (1) in accordance with FAR Part 6.302-1 only one responsible source and no other supplies or services will satisfy the agency requirements. The NAICS code for this procurement is 813212 Voluntary Health Organizations with size standard of 500 employees. No solicitation will be posted to FedBizOpps. This notice of intent is not a request for proposal. A determination by the government not to compete this proposed purchase order based upon responses to this notice is solely within the discretion of the Contracting Officer. Interested parties who believe they possess the capability to satisfy this requirement should submit a capability statement demonstrating their ability to meet the requirement. The government will review capability statements submitted to determine whether to conduct a competitive procurement. All responses should be emailed to Mr. Philip Robinson at
[email protected] using solicitation number 2016-N-17808 in the subject line no later than 10:00 am Eastern Standard Time, April 21, 2016.